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Retinoblastoma Resource
Section Introduction

About Retinoblastoma
How the Eye Works | Biology of Rb | Unilateral Rb | Bilateral Rb | Extraocular Rb | Trilateral Rb | Genetics | Incidence | Symptoms | Diagnosis | Treatment | Follow Up | Prognosis | Glossary A – M | Glossary N – Z

White Pupil - Leukocoria
What Causes "Red Eye"? | What Causes "White Eye”? | Photo Challenge | White Pupil and Rb | White Pupil in Adults | Photography Technique | What to Do Next | The Eye Exam

Medical Care

Diagnosis
Staging and Classification | Useful Things to Take to the Hospital

A Therapeutic Alliance
Your Child’s Doctors | Good Communication | Second Opinions | Conflict Resolution | Changing Doctors | Medical Staff

Rb Genetics
RB1 Genetics | Mosaicism | Genetic Counselling | Genetic Testing | What Results Mean | Glossary A – M | Glossary N – Z

Procedures
Informed Consent | Pain Management | Blood Draw | Bone Marrow Aspirate | Bone Scan | Chest x-ray | CT Scan | Echocardiogram | EUA | Eye Pressure Test | General Anaesthesia Induction | Hearing Test | Inserting an IV |  Intrathecal Injection | Lumbar Puncture | MRI Scan | Radionuclide GFR | Subcutaneous injection | Taking a temperature | Transfusions | Ultrasound

Treatment

Enucleation
Enucleation | The Surgery | Implants | Types of Implant | Side Effects | Pathology | After Surgery | Coping With Other People | Artificial Eyes | Artificial Eye Care

Focal Therapy
Laser | Cryotherapy | Chemotherapy Injections

Chemotherapy
Chemo for Retinoblastoma | Regimens and Protocols | During Treatment | Central Venous Catheters | Catheter Care and Risks | Blood Test Results | Blood Values 1 | Blood Values 2 | When To Call The Doctor

Radiation
Plaque Therapy | Coping With Isolation | External Beam Radiation Therapy (EBRT) | Preparation for EBRT | Treatment Process | Side Effects – Short/Medium Term | Side Effects – Orbital | Side Effects – Neurological | Side Effects – 2nd Cancers | Ask The Doctors

Stem Cell Transplant
Types of Transplant | Transplant Process | Complications | Long Term Side Effects | Preparing for Transplant | Ask The Doctor

Side Effects
Low Blood Counts | Pneumonia and Chickenpox | Protect Your Neutropaenic Child | Animals and Chemotherapy | Fatigue | Pain | Hair Loss | Nausea and Vomiting | Taste Changes | Mouth and Throat | Skin and Nails | Diarrhoea | Constipation | Bed Wetting | When to Call the Doctor

Clinical Trials
Clinical Research | Phases of Clinical Research | Protocol Document | Monitoring and Safety | Rb Clinical Research | Informed Consent | Ask The Doctor

Hospital Life
Be Your Child’s Advocate | Packing for Hospital | Hospital Life | Your Child’s Space | Record Keeping | Recreation

Out-of-Country Care
Contacting Doctors | Finances and Fundraising | Travel and Accommodation | Questions To Ask

End Of Treatment
Celebrations | Follow Up Care | Follow-Up Schedule | Long Term Follow-Up | Removing the Central Line | A New Normal | Relapse and New Tumours | Second Primary Tumours | Symptoms of Second Primary Tumours | Ask the Doctor

End Of Life
Ending Treatment | Palliative Care

Child Life

More Than Play
The Art of Child Life | Neonates (0-30 days) | Infants (1-12 months) | Toddlers (2-3 years) | Preschoolers (3-5 years) | School Age (6-12 years) | Teenagers (13-18 years)

Procedure Preparation and Support
Staying Calm | Make A Plan | Medical Play | Distraction Play | Comfort Positioning | Eye Drops | Anaesthesia induction | MRI, CT, GFR and Bone Scans | Enucleation Surgery

Parent Supported Pain Management
Signs and Symptoms | Reducing Pain | Psychological Pain Management

Special Eyes
Before Enucleation | Going to the Ocularist | Making a New Eye | Removing and Replacing the Eye | Keeping The Eye In Place |  Young Child Living With a Special Eye | Older Child Living With a Special Eye | When There Is No Artificial Eye

Psychosocial Support
Encourage Your Child | Coping With Difference | Rb Week at Camp Sunshine
About Us
Introduction
Our Mission | Our History | Daisy and Rati | Daisy’s Story | Rati’s Story | Meet Our Team | Contact Us | Disclaimer | Terms of Use | About This Site | Privacy Policy |
Our Programs
Introduction

Annual Awareness Campaigns
World Retinoblastoma Awareness Week | Childhood Cancer Awareness (Gold Ribbon) Month | World Child Cancer Day | Take Action

Rati’s Challenge
Rb In Africa Today | Kenyan National Rb Strategy | Raising Awareness | Medical Care | Guidelines | Pathology | Protocols | eCancerCare | Retcam Donation | Artificial Eyes | Family Support | Information | Cycle of Light | Child Life | Kito House

Global Challenges - Achieving Evidence Based Care
Guidelines | Collaborative Research Community

Family Support
Retinoblastoma Information | Help for Individual Families
Get Involved
Introduction

TThe Impact You Make
 My Story (part 1) | My Story (Part 2)

Donate
Donate Online | Donate By Post | Angel Eyes Gifts | Make a Regular Gift | Leave A Legacy | Loose Change

Volunteer

Events

Fundraise
Organise An Event | The Great Daisy Bake | Grace’s Gift | Sporting Challenges | Find a Sporting Challenge | Overseas Challenges | Search 4 Daisy | eBay 4 Charity | Go Shopping

Corporate Partnerships
News and Media
Introduction
Newsletter | Connet With Us

Media Enquiries
Notes to the Editor – Rb | Notes to the Editor – DECF
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